Resources for Parents

Parents with a newborn in the neonatal intensive care unit (NICU) understand this is a uniquely stressful experience. Our “Resources for Parents” page will help connect you with trusted organizations that offer support, guidance, and practical help. Whether you’re looking for peer mentoring or support groups with other NICU parents, medical information, therapy options, financial assistance, or community programs, these resources are designed to help your family access services and support you may find helpful.

National Organizations

Hand to Hold

Website:https://www.handtohold.org

Provides:

  • Virtual Support Groups for NICU Parents
  • Peer Mentoring from Parents Who Experienced NICU
  • Online Communities for NICU Parents
  • Educational Resources and Podcasts

March of Dimes NICU Family Support

Website:https://www.marchofdimes.org/our-work/nicu-family-support

Provides:

  • Educational Resources for NICU Families

Family Voices

Website:https://www.familyvoices.org

Family-led organization supporting children with special healthcare needs

Provides:

  • Parent-to-parent support
  • Healthcare navigation assistance
  • Educational resources
  • Advocacy training
  • Support Groups & Networks

 

Project Nicu

Website:https://www.projectnicu.org

Provides:

  • Peer-to-Peer Virtual Support Groups for NICU Parents
  • Peer Mentoring from Parents Who Experienced NICU
  • Online Communities and Parent Blog for NICU Parents
  • Free Online Counseling Program with a Professional Counselor
  • Educational Resources

State and Federal Organizations

Children’s Special Health Care Services

Each state has its own early intervention program and rules about eligibility and services. To find
your state’s Early Intervention Program visit https://www.cdc.gov/act-early/early-intervention/contact-information-by-state.html

Or, contact your state's Department of Health

  • Early Intervention programs may provide:
    Medical equipment
    Therapy services
    Specialty medical care

Supplemental Security Income (SSI)

Website:https://www.ssa.gov/benefits/disability

Federal program providing financial assistance for disabled children

Contact the local Social Security office for eligibility requirements

Medicaid Waivers

Contact your state’s Medicaid office

May provide coverage for:

  • Medical equipment
  • Therapy services
  • Home modifications
  • Personal care assistance
  • Educational Resources